recaps of the top 'ask me anything' interviews from reddit and more...
I was born without a ear. Ask me anything !

Since i was born i did not have an ear shape or an ear canal on my left side (known as microtia), had to undergo a surgery on my right ear at 2 y/o to make an ear canal. For 17 years of my life i had to live like this. Currently undergoing 5 sets of surgeries (recently finished the 2nd stage!) in order to make both an ear shape and an ear canal.

Ask me anything !! I will answer any questions honestly!

Edit 1: YES I KNOW THAT IT IS ‘AN’ EAR OKAY I CAN’T CHANGE THE TITLE NOW!!!

Edit 2: This AMA is always open for questions! You don’t have to PM me to ask me a question!

Proof: https://imgur.com/a/kXip9Zq P.S This photo was from after my 1st surgery. Don’t have a picture from before.


135
questions
2,139
score
November 17th 2019
interview date
Simzter

Do you have or will you have hearing on that side?


TLJQ

Actually, i do have hearing on that side! I realised that when i was i think 15? Up until that age i never actually used a pair of headphones. Until i had to wear one for an examination. Was extremely surprised when i started hearing on the left side when i thought i couldnt hear on that side. This surgery im taking is to improve my hearing significantly, and also for the appearance.

arsenaal

Is it hard to be social person with that problem or do you try hide it?


TLJQ

Yes and yes, in my entire life, i have never actually approached someone to socialize with because i was conscious of what they think of my condition, because of that i have a small social circle. All of them were the ones who approached me. In another question i mentioned this, but in public places i always sit at places where my left ear would be the least visible to the public.

Ninjaturtlethug

When people ask a question that you can hear, do you pretend you couldn't hear it?


TLJQ

Its the opposite actually, when people ask questions and i actually cant hear it i pretend i can understand them, because i am so frustrated with my condition that i do not want to incovenience people by making them continuously repeat their questions.

original_greaser_bob

Did you know you and Paul Stanley of Kiss had this in common?


TLJQ

I just searched him up, i never really heard of him until now when you mentioned him. But wow, someone as popular as this had the same condition as me!

Solid_Shnake

WHATS IT LIKE!?


TLJQ

Answered it already but here ya go anyway

What is it like? Hmm.. well my hearing is definitely wayyy below average, most of the time, when others can hear someone speaking, i cant. Since young i have definitely been bullied for my condition, but it stopped once i went to college. That fustrates me a lot, hence i decided to take up the surgery despite it getting in the way of my education.

BelligerantFuck

There are dozens of us! I too was born with a malformed ear and no ear canal. I had four reconstructive surgeries when I was 8-9 years old back in 1989-90. They were scared to drill a hole in my head for fear they would hit a nerve that would give me the droopy face similar to a stroke. Therefore I still have zero hearing on that side. Was that concern raised to you by your doctors?

The results after the my first surgery were hideous compared to yours and the end result isn't much better. I'm glad you have benefit of modern science that may give you a presentable ear and the sensation of stereo.

If you have questions or just to share experiences, I'd be happy to answer. I'll never forget the pain of trying to sit up in the hospital bed after the first surgery where they took cartilage from ribs. After reading your AMA I feel like I'm talking to a clone of myself.


TLJQ

I said it in my post already, but i also had another surgery in 2003 where they actually made a ear canal in my right ear, when i was born my right ear had the shape, but it did not have a ear canal. Since i was a baby back then i do not know whether the doctors from back then had brought this up to my parents, but its pretty surprising how a mere 13 years difference can have such a huge advance. Its still too early for me to share experiences, since im only on the 2nd surgery, which went well without it hurting too much like the first one

PyrocynicalIsACunt

Have you ever been made fun of and how does it feel to the touch?


TLJQ

Of course, i have been made fun of when i was younger, classmates usually made fun of how i reacted when i could not hear what someone asking and about the fact that i do not have a ear (obviously). How does it feel to the touch? Well originally i only had a weird shaped ear lobe, and it feels exactly like how any other earlobe would feel like.

darthbiscuit80

If someone is talking to you and you’re spinning around in a circle does it sound like this is written?


TLJQ

Why in the world would i spin around when someone is talking to me, jesus christ! Never did that before but it will probably sound like how that is written

Aliens2u

Has it affected your balance any?


TLJQ

I have read about something like this before, but have never experienced any problems with my balance at all, it could be because i was born with this condition and not lost my hearing. Well who knows?

TrumpsBoneSpur

How long did it usually take before people noticed "what's different about him"?


TLJQ

By habit, i always sit in places where my left side is the least visible to the public, so usually people never notices there is something different about me. However, if someone is speaking to me face to face, he/she will immediately notice my left ear. How do i know this? Because i see them, for a split second, shifting their attention to my left ear then back to my eyes. They think i dont notice them doing that but i see it everytime.

e136

To clarify- your right side has a normally working ear? Do you tend to rotate your head to the left so that ear faces forward a bit?


TLJQ

Yes, my right side has a normally working ear, however now the hearing on the right side is below average, due to me heavily depending on the right ear - for example because i can only put one side of the earpiece i usually put it in a louder volume. Yes i do, only in the case where i cant hear someone clearly.

Mirrirr

Did someone grow you an ear in a lab from your own tissues? I understand that's been possible for a few years now.


TLJQ

Haha nope non of the sort. My ear is getting made from scratch, that is why i have to under go 5 separate surgeries

first_redditd

What would you say to an 8 year old with the same experience? Any advice?


TLJQ

I don’t really have much advice since there isn’t much you can do about it if your hearing is reduced because of a deformity. But what i can say is that he/she should stay strong, the child would definitely experience more bullying, stares from other people and problems in everyday life. But for sure some day he/she will stop cursing themselves that they were born that way, because these experiences will shape them into a better person.

jkpeaches

Hey friend, this is pretty interesting to see, thank you for sharing! My brother was born with Microtia of his right ear, so the outside parts were small and underdeveloped, and there was no hole to get to his inner ear. In the US it would've been wildly cost prohibitive to have anything cosmetic done to repair or help ($40k-$80k out of pocket). Do you guys have amazing insurance or a special doctor advocating for treatment? Or are you not in the US maybe, but either way this is pretty cool to see. I'm stoked to see you and your folks have treatment options in your teens. My brother is in his forties and he's just fine, but I know having it fixed would have been great too. Thanks again for sharing with us!


TLJQ

Yes! I’m not in the US.

In my country, as long as you are a citizen and is a teenager/elderly, most medical fees would be subsidised. On top of that, this procedure is not really counted as a cosmetic surgery but rather a medical one, because of that part of the cost is also covered by insurance. In us dollars, for every surgery my parents probably pay around 3k.

This is probably why my parents encouraged me to get the surgery earlier, so that i can still qualify for subsidy.

LBJsPNS

Do you find the rest of us a bit eerie?

(Say it aloud. I'll be going now.)


TLJQ

What do you mean exactly by finding the rest of you eerie?

zdogg43

I was also born without an ear, on my right side. Mine was a birth defect due to Acutane. I am lucky that’s all is wrong with me. Do you know what caused you to be born without one?


TLJQ

I have no idea why i was born without one, since i never asked my parents as i was never curious about that haha

PressTen

does surgery hurt?


TLJQ

Man, the first surgery was extremely hellish, because i had surgery on 2 different parts of my body, the left side of my ear and the right side of my chest. Meaning that i could only sleep face up, which was a hard thing to do as i usually sleep on my sides. Trying to move around or get up from bed was also hard as hell, since my chest had an incision, i could not even sleep at all on the first day. Man, words can’t describe that pain. The last surgery i did didn’t really hurt as much, probably because it was more minor.

Daddy_0103

Why at 17? Was the surgery not permitted before or due to finances or something else?


TLJQ

According to my parents, it was because i could only get the surgery from the age of 15, but at that age i didnt want to do it because well, it was too sudden and i was not prepared, for a good 2 years i came to realise that i had to take the surgery sooner or later.

Aiku

How's that Goghing for you?


TLJQ

No

LindseyLee5

Do doctors know/ have a general idea why your left ear didn’t form?


TLJQ

They have never mentioned anything about why my ear didn’t form, nor did i ask them (because I’m not really curious). But the performing doctor i have today is definitely different from the doctor i had 16 years ago, who might have explained it to my parents.

cc10003

Have you learned any sign language?


TLJQ

Nope, have no reason to since i could still hear and speak, just not as clearly as normal people.

raysawma

How is it like?


TLJQ

How is it like? Hmm.. well my hearing is definitely wayyy below average, most of the time, when others can hear someone speaking, i cant. Since young i have definitely been bullied for my condition, but it stopped once i went to college. That fustrates me a lot, hence i decided to take up the surgery despite it getting in the way of my education.

LilGl1tch

Did you get to pick what your new ear is going to look like or did the doctors have some kind of strategy to pick it for you?


TLJQ

It would be weird if both of my ears looked different from each other right? So the doctors tried their best to make my left ear look as similar as possible to my right. I just have to wait and see the final results.

being_paul

How did your parents support you throughout your years? How would you have liked to be treated?


TLJQ

They have never brought up anything regarding my ear other than the surgeries throughout my life, I think that they have treated me just like how any other parents would treat their child, and i am just satisfied with that.

eduardocereto

Can you wear glasses?


TLJQ

Nope, got no ear for the glasses to hold on to, will always fall on the left side.

Tigersnap027

Do you think that going through all the surgeries you've had, and are planning to still have, is worth it for the expected results?


TLJQ

I guess its worth it. Going through all this will give me a easier life in the future, since i won’t be constantly be stared at in public (at one point a kid just went around the bus stop to look at my ear ;-;) and also, i will be able to hear significantly better, even if it’s not as good as normal people.

holyduc

I actually have the same condition and even on the same side! But my experiences were very different, I actually never had a problem with the way it looked and I actually liked the way it felt when I kneaded it with my hands. I might have been teased a bit by my friends but I never took it that serious and never became as self conscious about it as about my acne for example. My parents are giving me the opportunity to undergo similar operations, but I don't actually know if I want to? I just feel like its part of who I am and makes me unique so there's that


TLJQ

NGL, but it did feel good to touch it, but then again this is for my future, getting the operations would help me alot more in life.

joojie

Do you have all of the normal inner ear structures? Everything past the ear drum?


TLJQ

I have no idea about that .-. I don’t have a ear canal, so doctors won’t know if i have normal inner ear structures until they make a ear canal. However, my right ear is normal.

Patamon4

I also have unilateral microtia. May I ask where you're getting the surgical procedures done? Also are you using the rib cartilage to get it done? Best of luck! Heres mine right after the BAHA surgery! https://imgur.com/a/4zZsiLA


TLJQ

I don’t live in the US, so its definitely not in any hospital there, yeap i am using the rib cartilage to get it done, the above picture is after the rib cartilage was installed.

TheVoiceInWadesHead

Do you paint?


TLJQ

Don’t worry, zero traces of Van Gogh in me

monkeypowah

Have you ever thought of wearing a Motorcross..No Fear tshirt and crossing out the F?


TLJQ

Have no idea what is motorcross, never thought bout that

Zer_0

Forgive the personal question: Ears are Erogenous zones. Have you ever felt comfortable letting a SO kiss your ear? how did it feel compared to your other ear?


TLJQ

I’m single 😞

Syncrondome

Is your condition as a result of a birth defect or is there a more specific name for this condition?


TLJQ

Yes, my condition is a result of a birth defect, and the specific name for this condition is known as Microtia.

CapnClusterFuq

Is it difficult wearing sunglasses?


TLJQ

I just don’t. Since i don’t really require sunglasses.

Alberto9324

Do you get headphones for 50% discount?


TLJQ

If i could i wouldn’t have taken this surgery, imagine buying headphones for 50% discount and reselling them - the money i would make!

Physicswhiz

I actually used to know a guy that had this. Our parents had trailers next to each other in a camp ground. I felt really bad for him because he always had a bad attitude, nobody wanted to hang out with him. But I always figured his attitude was because of being made fun of a lot.

So for a question, growing up, for people tend to give you a hard time?


TLJQ

Of course, growing up i was constantly getting bullied by others, but it didn’t give me a bad attitude, it just strengthened my mentality since all these years i have never snapped at someone who made fun of me

HickoryDoc

I know someone with a similar condition, though I have never asked them anything about it, don't know if they can hear at all from that side. My question for you is, do you talk primarily from one side of your mouth? I can tell from this person that they talk out of one side of their mouth and likely because the sound only comes in from one side primarily and he can't tell that he is doing it.


TLJQ

I just tried saying the ‘sh’ sound, and it seems like i do have a stronger emphasis on the right side of my mouth, although i still use the left side.

thecustodialarts

I have another one:

You mentioned surgery, how close to a normal ear can surgery get you?


TLJQ

In terms of? The hearing or the cosmetic factor? If it is the hearing, it will pretty much be like a normal ear, since i do have eardrums and all on the inside, just need a ‘pathway’ to those. If it is the cosmetic factor, then i am not very sure, but as far as i know the doctor says that he tried his best to make the ear look similar to my right one, and the final results should make it look closely similar to each other.

madddskillz

Do you still get earwax? And is it similar to the other ear if so?


TLJQ

I have no ear canal on my left side, so of course, i wouldn’t have any earwax

Sherioo

Do you have difficulties distinguishing if the sound is coming from the front kr tha back? I heared that spacial hearing relys on different sounds entering both ears depending where the sound is coming from.


TLJQ

Nope, have no difficulties with distinguishing between sounds coming from the front and back. Like right now, im sitting at the back of a bus where the engine is located at, and can clearly hear the engine from the back.

CmdrNorthpaw

After the surgery, did you have to go around with your face wrapped in bandages like people with facelifts do?


TLJQ

Nope, after the surgery, the doctors encouraged me to not put any form of bandage over my ear, so i moved around with it completely exposed!

itwasjustaneyelash

In nursing school I remember learning about the progression of fetal development, and that ears develop around the same time as your kidneys. They taught us that if a child has ear abnormalities, they may also have some kidney abnormalities. Have you noticed any kidney-related issues thus far??


TLJQ

Zero. Never really had any issues with my kidney, and they work normally.

747excalibur

Do you get offended if someone gives you a wet willy?


TLJQ

Never got a wet willy before haha, actually had to search that up

JackDaw1012

Have you ever try to hide it from someone? What do people usually say when see your ears at first time?


TLJQ

I do hide it from the public, but if someone talks to me face to face, i never try to hide it. Most people never says anything when they see my ear, but when they do its all the same question: ‘Sorry but.. can i ask what happened to your left ear?’

TangoWhiskey23

Did you know a skilled facial plastic surgeon can take what you have and turn it into a regular looking ear? I work for one and I’ve seen it.


TLJQ

I do have a skilled surgeon from the ENT department, which have taken my cartilage and make it look as similar as possible to my right ear, and also made the earlobes the same.

Vitztlampaehecatl

Hey, me too!! How good do you think the reconstructive surgery works vs doing what I did and just getting a bone-anchored hearing aid?


TLJQ

Can’t really say for sure since my surgery has not been completed yet, and i have no idea how a BAHA would sound like, though i would assume it just sounds like a normal hearing aid

lillyringlet

Cousin in law has similar to you (he grew his ear on a rib or something like that).

He used to have long hair to hide his ear. After his surgery he went straight to a short hair look.

Have you found the same that you dress or style yourself differently before and after?


TLJQ

Right now, i still have 3 more surgeries to go. But regarding how i style myself, i dont really style myself differently from how i would if i had a ear. I’m self conscious about my condition but wouldn’t go as far as that to hide it, since people would just end up finding out about it.

kryptonz123

What are one of the most common problems you face on a daily basis?


TLJQ

One of the most common problems? Hearing of course, extremely big problem on top of all the staring and all. When other people can normally hear something, i wouldn’t be able to.

BeatsFromTheFuture

Have you read think and grow rich? The book talks about the authors son who grew up with no ear


TLJQ

Probably won’t, because i’m not really the type of person who reads books.. will probably fall asleep after reading 2 pages

_grey_wall

Napoleon Hill's son was born without ears. Have you heard of his story in "think and grow rich"?


TLJQ

In another comment another person asked me if i did read his book, seems like i should really take a look at least

Spykez0129

Did you hate the Verizon commercial when he asked if you could hear him now?


TLJQ

Don’t live in the us, don’t have a telecom called Verizon, so have never seen the ad you are describing .-.

MadDany94

If you could choose, which celebrity ear would you want to copy for your new ear?


TLJQ

Thats weird, i never even thought of it, I would rather have my new ear look like the one on my right

zelcor

Where's your missing ear?


TLJQ

Only god knows where it went

lurking_my_ass_off

Do you wear glasses, and if so, how?

Also, are you a fan of Van Gogh?


TLJQ

Nope, pretty much impossible to wear glasses. Only just found out yesterday who was he, haha

jimmycarr1

What's the most significant body part you would swap to give yourself another ear, if you had to?


TLJQ

If i had to do something like that, i’d rather not. I can still hear since i have my right ear, isn’t really worth it to give up another body part for one more year IMO.

MEplusYOURMOM

Do you ever grow your hair long enough to hide it?


TLJQ

Nah, in another question i mentioned this but i dont feel like going to such lengths to hide it.

Sendmepicsforpikas

My dad and Aunt are both missing ears. Their mother smoked during pregnancy. Did yours?


TLJQ

As far as i know, my mother never smoked, only my father.

7eet

Were you able to hear before the surgery slightly or was it completely deaf?


TLJQ

I could still hear from my left ear before the surgery slightly!

CosmicLightning

Do you get a lot of ear infections on that side or the normal ear side?


TLJQ

Honestly, i have never experienced a single case of an ear infection.

8791781927

What does it feel like having it sealed up like that?


TLJQ

It just feels normal, i was born like that, so i never actually felt any difference

strawberri_pao

When somebody tries to show you music with sharing their earphones, do you have to request for the right earphones or do they usually remember?


TLJQ

Sometimes they do end up passing me the left side earphones, i just wear them anyways :3

bojankins

Do you just tell people you do Jiujitsu?


TLJQ

Why would i do that? 🤔

doomsdaysushi

How are your eyes? Is your eyesight normal?


TLJQ

Yes, my eyesight is normal, don’t require any glasses thankfully

Macluawn

How do you wear glasses for 3d movies?


TLJQ

I have not gone for 3d movies in like years, but when i did, i always held up the left side of the glasses, not that tiring since movie theatres has arm rests

[deleted]

[deleted]


TLJQ

Answered that in 2 other questions! :3

sometimes_interested

Do you have trouble wearing sunglasses?


TLJQ

I don’t wear sunglasses, just gotta deal with it man

pocketbullets

Does it ooze wax?


TLJQ

Nope, i don’t have a ear canal at all, so its’s basically sealed up

axel2191

Is this hemifacial microsomia?


TLJQ

Nope, it is Microtia.

NodoBird

Semi-unrelated: what's your favorite song?


TLJQ

I want it that way by Backstreet Boys

uzf123456

Do you get constipation due this?


TLJQ

Why would i get constipation due to this 🤔

Afafakja

Do you like ASMR?


TLJQ

Yeaap, rely on asmr to fall asleep most of the time.

mwengroff

Do you run into difficulty when using in ear earbuds?


TLJQ

I do, probably because the ear canal on my right ear is pretty narrow, sometimes the earbuds pop out of my ear, the only one i could use right now is probably the apple earphones

nessager

Do you wear sunglasses, and if so how?


TLJQ

No i don’t....

BrokenGothDoll

What's your favourite biscuit?


TLJQ

Oreos.

randomsofjoy

Does that side get ear wax?


TLJQ

Since there is no ear canal, there is no space for ear wax to form!

keyshawn-spanks

Why does your ear look like a floppy dick? I’m sorry if that’s offensive


TLJQ

That was before haha, it now looks more normal after the 2nd surgery

Worfsfeatherduster

Do you tip over?


TLJQ

Tip over? Because of balance issues? In another similar question, i mentioned that i never had any issues with balance.

Positiveone1

Can they grow an ear on a rat and attach it for aesthetic purposes?


TLJQ

Have no idea about that kind of stuff, but the way they did it for me was by taking out a cartilage from my chest area and shaped it into a ear.

ebaley

Will people lend you their ears?


TLJQ

Not literally, but yea i do ask ppl to convey messages sometimes

LemonHerb

Have you ever considered taking up wrestling or grappling of some kind? You would fit right in. Having normal ears on the wrestling mat make you the uncommon one


TLJQ

Yeap, i understand that there is a condition known as cauliflower ear thats common among fighters, but yea, i have considered taking up boxing by my own interest, although the final results will not probably look like i have cauliflower ear.

klevenisms204

Back in the early-mid 90s when "no fear" was popular.. a kid here who had microtia always wore the shirts... He put the sticker on his dirtbike and someone ripped off the "f"

He owned it tho. Funny guy.

Have you always been able to make light out of it too?


TLJQ

Yeah of course, when im with my friends, i do things like that!

Mannyboy87

Do you ever get told it looks like the Fallout ‘arm out with a thumbs up’?


TLJQ

Nah, its probabky just you, and not many have brought up my ear, so they wouldn’t say that it looks like anything at all

Airazz

YES I KNOW THAT IT IS ‘AN’ EAR OKAY I CAN’T CHANGE THE TITLE NOW!!!

Could you at least change the text in your submission just like you added this line, you maniac?


TLJQ

Whoopsies, changed it

NLLumi

Do people think you’re a tough guy because of your cauliflower ear?


TLJQ

Keep in mind the the picture that is in the photo was not how it originally looked, before it was the same, except without a shape similar to a cauliflower ear. And nah, after that surgery it was not really visible from the front.

langbanger

I have microtia and artesia as well in my right ear but have never had any procedures. Is there a specific reason your family elected to have surgery on you at such an early age?

My parents waited until I was old enough to be involved in the decision. I've never had a desire to have the procure because of how invasive it is and it doesnt bother me being deaf in one ear.

Sure it can be frustrating at times in loud situations or with new people. But my friends and family know what side to stand on when talking to me and where I prefer to sit so my good ear is facing everyone.

Not to mention, nothing wakes me up when I sleep!


TLJQ

Early age? Do you mean the one i got when i was 2 years old? If so, it was a necessary one, if not, i wouldn’t have any ear canals on either side of my ear.

iamadapperbastard

walks around to right side

Does it have any effect on your balance?


TLJQ

No, it never had any effect on my balance, maybe it is because i was born with the condition, and not lost my hearing.

plaidmonkey

Hi! So, my mom actually was also born without an ear, and just recently got a cochlear implant to help her, since she was losing hearing in her remaining ear (she's 60 now.)

I see in some of your other responses that you did indeed have some hearing on that side; that's so wild to me. Is the surgery to create an ear canal a more recent thing that they've been able to do? I ask because my mother never underwent any kind of surgery (until the implant last year), but she had been fitted for a prosthetic ear as a child.


TLJQ

Its probably not recent, since i underwent a ear canal surgery in 2003 when i was 2 years old, although the ear canal is more narrower than normal.

ausernottaken

How long does it usually take for people to notice?

I have the same thing on the right side, and sometimes it takes months for people to finally notice, and I wear my hair fairly short with no hats.

Do you experience Tonic Tensor Tympani Syndrome (TTTS), Stapedial Tendon Myoclonus, or anything similar?

Also, if you have any questions for me, I'd be happy to answer them!


TLJQ

Months? Damn, it took all my friends less than a few hours to notice that i only had one ear, i don’t really experience anything like the syndrome you described.

kuisus1233

Dude same. I was born with one ear as well. There's nothing on the other side except a mass of flesh. Don't even have any hearing unfortunately. I'm an audio engineer looking to create a utility program (or a VST) for us one eared folk. Could we talk about what you'd look for in a program like that to augment your life/ music listeningexperience?


TLJQ

I probably cannot help you with this, since i could still hear from the left side as long as i used a headphone, i was satisfied as long as i could hear music through them.

Taylor_Satine

My nephew has this! How did they make your ear? For him they removed parts of his rib, formed an ear, and then used skin from his groin area. It looks like an actual ear, I don't even notice it unless I think about it. The only issue he is having now is since the skin came from his groin, and being a teenage boy, he is now growing hair on it...


TLJQ

The procedure is actually pretty similar to your nephew’s! Except that instead of the groin, the skin is taken directly from the thigh, and does not grow any hair on it!

ThracDivergente

If i ask, you'll hear me?


TLJQ

Yeap, i can hear you if u say something to me irl, since i can still hear.

YoungDiscord

So does that mean that you have everything needed to have a functional ear but just don't have an ear and a canal?

I'm asking because my question is how does it feel to be able to fully hear from both sides? does it feel weird? uneven perhaps? like everything is louder on one side? I'm really curious


TLJQ

Yes for the first paragraph.

When i put on headphones, i hear everything clearly on both sides, it isn’t softer on one side at all.

fizzy_space

Do you or have you ever used a cochlear device? My son is 6 and has microtia of his left ear as well! He has had 2 surgeries with the second surgery being a magnet implanted under his skin so he could attach his cochlear device (a Baha) that way instead of a band. Also, thanks for doing this AMA!


TLJQ

I have never used a cochlear device, i only went as far as using a hearing aid, probably because my parents wanted me to take the surgical procedure to make an ear over using a cochlear device, honestly, i would have chose this surgical procedure as well if i was given a choice. Any way, its good that your son can use a cochlear device now!

Gayatri-Mantra

Did you also have heart problems and part of your esophagus missing?


TLJQ

Nope i don’t, why would i have those problems? 🤔

blondegedu

Do you have perfect hearing in your opposite ear or are you deaf/partially deaf. Did you learn ASL? Were you ever considered for a cochlear implant? I think that might have been interesting if you could hear one one side, and had an implant on the other.


TLJQ

I am partially deaf in my left ear, but it might be better after the ear canal surgery. I have never learnt sign language since i could speak. Never did, since its possible to make a ear why not just go for it right?

NicolaiOlesen

Can you use bone conduction headphones? Seeing as regular headphones rely on your ear drum and bone conduction headphones don’t. Could you use those before surgery?

https://www.google.com/amp/s/www.soundguys.com/bone-conduction-headphones-20580/amp/


TLJQ

I didnt bother to, since normal headphones could do the job for me.

alrightiwillbite

HOWS IT LIKE LIVING WITH ONLY ONE EAR!?


TLJQ

Yoo read the 1st comment man

royal_rose_

My best friend has this. What do you need to get the surgery? She is incredibly self conscious about it and last we talked about it she wasn’t aware of any surgery that could make it look like she had two ears.


TLJQ

Your best friend is a female huh? I would say that she might become self conscious of her body if she ends up taking this surgery. This surgery requiries taking out a cartilage from somewhere near the chest area, which will definitely cause a scar. She would also need to have patience, since there are about 4 surgeries if she only wants to look like she has two ears and 5 if she wants her hearing to improve as well, and in between each surgery you would have to wait 3 months. Pretty much any person with microtia can get this surgical procedure, would advice your best friend to talk to a doctor from the otolaryngology department.

Amarinth

A nurse once told me, as my daughter has a slightly deformed ear, to be aware of her kidneys because during pregnancies the ears develop the same time as kidneys. Have you ever had issues with your kidneys?


TLJQ

I have never had an issue with my kidneys, luckily.

miami-architecture

you probably already answered somewhere in the thread...

Does this condition affect your balance?

p.s. it must have been a really exciting exam when you figured out you could hear.


TLJQ

This condition does not affect my balance in any way, probably because i was born with it and not lost it.

Therideus

Does it mean that the internals of your ears are normal; like your eardrums, cochlea etc. but the external ear and the canal were not developed right?


TLJQ

Yeap, pretty much

headshotlee187

I seen in another comment that you can hear, but is the sound muted or different from that ear?

Also you might say thats kinda... Eerie.


TLJQ

The sound is pretty much the same when i use headphones, but when im not using headphones i guess it sounds softer

Misterholcombe

Do you think that having the surgery sooner would have been any different for you?

ETA: I have a 2yo with left sided M/A grade three.


TLJQ

I wished i could have taken the surgery sooner, but i couldnt because i was too young. But if i got it sooner, maybe i wouldnt have experienced the bullying in school, and would be more socially confident. But in a way, this condition has also done good things for me.

Dullgouge30

Maybe this was asked. But do you have modified sunglasses? I live in the tropics and would be lost with mine.


TLJQ

I dont use sunglasses at all, since i can’t wear normal sunglasses, might as well not

urpabo

So wait, do you have an ear drum on that side, but no canal? Or is your middle or/and inner ear missing too?


TLJQ

I probably have an intact inner ear on my left side, but just have no ear canal.

BEBA4U

Do you go out of your way to cover it, like with a hat etc.? Or do you not care, and leave it "exposed"?


TLJQ

I don’t care and just leave it exposed.

TubbyWorth

So how was listening to head sets that each side had a different sound for a certain song?


TLJQ

Pretty much the same sound when i use headsets, not much difference

1bad_hombre

My son has microtia in one ear. What would you have wanted from your parents growing up?


TLJQ

From young, i have always kept the situation about me getting bullied by classmates from my parents, even when they constantly asked if i get bullied. Because i was more afraid of my parents calling the school and getting the bullies in trouble, if that happened, the bullying would probably get worse than before. I have always wanted to talk to my parents about the bullying, but just could not because of that. Maybe when you talk to your son about bullies tell him that you would not call the school. If he does not tell you about the bullies himself, and you have to ask him about it, then he would be in the same situation as me. Another thing i was satisfied with was my parents treating me just like they would treat a normal child, meaning, don’t treat him better just because he has microtia.

mackenzor

Do you have trouble balancing? I've heard that ears are really involved in balance.


TLJQ

Nope, i have zero problems with balancing, maybe because i was born with the condition and not lost my hearing.

Nicist

hows the process going? i can't read comments so ignore if youve already answered!


TLJQ

I recently finished the 2nd surgery, which they got rid of the pearl-like lump of skin (as seen from the picture above) and moved the earlobe over to the bottom of the ear shape. Right now it is starting to look like an actual ear.

Baconfat

So it's a problem with early development.

Sorry for the pun... Is it genetic?


TLJQ

Its not genetic, nobody in my family has had a condition like mine, so its probably just chance that i ended up with the condition.

Thereck15

Does your ear still produce wax and if so is it uncomfortable to get it out?


TLJQ

My ear cannot produce ear wax since it doesnt have a ear canal, so nope.

ybdule

Who do you consider to be your most important healthcare professional?


TLJQ

I don’t really have any preference for a healthcare professional though .-.

Ehelio

Is there any question that bothers you the most about that?


TLJQ

No, there isn’t! That is why i started this Ask me ANYTHING, so i can satisfy other people’s curiosity!

dullman271

how do you wear sunglasses ? Also thank you for answering .


TLJQ

I don’t, just gotta deal with it.

iamintuitive

Have you ever been interested in learning sign language?


TLJQ

Nah, never been interested, since i did not have to learn them when i could speak.

thecustodialarts

What's the worst thing anyone has ever compared it to?


TLJQ

Have none, everybody i have met up till now has never compared it to anything at all.

Lohnlee

Do you ever just flick it to see what it feels like?


TLJQ

Haha nah, but i can at least tell you that it feels exactly like a normal earlobe. Doesn’t have any difference since it’s still part of my skin.

EliquentXsabotage

Parents location and diet during pregnancy?


TLJQ

I have no idea since i never asked them, sadly.

Kindernut

Do you have any issues with your kidneys?


TLJQ

Nope, i have no issues with my kidneys, they work well.

Nattethan

How big is the chance of having it?


TLJQ

Have what? The deformity? About a 5 in 10,000 chance!

Open_Power

are your other senses heightened?


TLJQ

Haha, those kinds of tv shows you see are just nonsensical, so no, my other senses aren’t heightened.

HellFapper

How do you use 3D voice in games?


TLJQ

I have actually never used 3D voice in games, have no idea what those do

NodoBird

How much do you save on Q-tips?


TLJQ

Tbh i would probably not use them even if i had 2 ears. Reason being i’m too lazy to clean my ears, usually the doctors are the ones that remove all that ear wax.

emocoffeedrinker

Are you gonna get it pierced ?


TLJQ

Maybe after the surgeries, maybe not, just gotta see how it goes!

Jesse_Allen3

Are you able to wear glasses?


TLJQ

I dont have any need for glasses since my eyes are fine, but no, its impossible to put on glasses for me.

Johnzav59372

Do you like to eat macaroni?


TLJQ

I only like one type of macaroni - mac n cheese

lillbich

How do you wear sunglasses?


TLJQ

I just don’t, man.

Tennybrio

Do you wear and earwig?


TLJQ

Nope, i just walk around without anything of the sort. Just gotta deal with people staring

waqasvic

Do you get tinnitus?


TLJQ

I do, actually, from time to time. Pretty annoying since whenever i get tinnitus i end up being unable to hear anything since my hearing is already reduced drastically.

Omaha_Poker

Do you get ear ache?


TLJQ

Nah, never

jpastore

How's your vision?


TLJQ

My vision is completely normal, just like any other people.

Jumlee77

Is sound muffled?


TLJQ

Nope, sound is not muffled in my left ear, can hear pretty clearly if i use headphones.

CleanReserve4

So the canals were missing, but eardrums and nerves are there?


TLJQ

Answered this already, here’s a copy paste from before

I have no idea about that .-. I don’t have a ear canal, so doctors won’t know if i have normal inner ear structures until they make a ear canal. However, my right ear is normal.

leog007999

Do (mean) people ever mocked your ears?


TLJQ

Yes they did of course, i answered this with more detail in another question

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TLJQ